Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients

Mark Sabaz, John A. Lawson, David R. Cairns, Michael S. Duchowny, Trevor J. Resnick, Patricia M. Dean, Anne M E Bye

Research output: Contribution to journalArticle

92 Citations (Scopus)

Abstract

The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.

Original languageEnglish
Pages (from-to)680-691
Number of pages12
JournalEpilepsy and Behavior
Volume4
Issue number6
DOIs
StatePublished - Dec 1 2003

Fingerprint

Epilepsy
Quality of Life
Seizures
Psychometrics
Reproducibility of Results
Population
Parents
Surveys and Questionnaires
Child Health

Keywords

  • America
  • Children
  • Epilepsy
  • Quality of life
  • Surgery
  • Validation

ASJC Scopus subject areas

  • Clinical Neurology
  • Behavioral Neuroscience
  • Neurology

Cite this

Sabaz, M., Lawson, J. A., Cairns, D. R., Duchowny, M. S., Resnick, T. J., Dean, P. M., & Bye, A. M. E. (2003). Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. Epilepsy and Behavior, 4(6), 680-691. https://doi.org/10.1016/j.yebeh.2003.08.012

Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. / Sabaz, Mark; Lawson, John A.; Cairns, David R.; Duchowny, Michael S.; Resnick, Trevor J.; Dean, Patricia M.; Bye, Anne M E.

In: Epilepsy and Behavior, Vol. 4, No. 6, 01.12.2003, p. 680-691.

Research output: Contribution to journalArticle

Sabaz, M, Lawson, JA, Cairns, DR, Duchowny, MS, Resnick, TJ, Dean, PM & Bye, AME 2003, 'Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients', Epilepsy and Behavior, vol. 4, no. 6, pp. 680-691. https://doi.org/10.1016/j.yebeh.2003.08.012
Sabaz, Mark ; Lawson, John A. ; Cairns, David R. ; Duchowny, Michael S. ; Resnick, Trevor J. ; Dean, Patricia M. ; Bye, Anne M E. / Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. In: Epilepsy and Behavior. 2003 ; Vol. 4, No. 6. pp. 680-691.
@article{5386fce755b64b90951f2c47e1dd08aa,
title = "Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients",
abstract = "The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.",
keywords = "America, Children, Epilepsy, Quality of life, Surgery, Validation",
author = "Mark Sabaz and Lawson, {John A.} and Cairns, {David R.} and Duchowny, {Michael S.} and Resnick, {Trevor J.} and Dean, {Patricia M.} and Bye, {Anne M E}",
year = "2003",
month = "12",
day = "1",
doi = "10.1016/j.yebeh.2003.08.012",
language = "English",
volume = "4",
pages = "680--691",
journal = "Epilepsy and Behavior",
issn = "1525-5050",
publisher = "Academic Press Inc.",
number = "6",

}

TY - JOUR

T1 - Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients

AU - Sabaz, Mark

AU - Lawson, John A.

AU - Cairns, David R.

AU - Duchowny, Michael S.

AU - Resnick, Trevor J.

AU - Dean, Patricia M.

AU - Bye, Anne M E

PY - 2003/12/1

Y1 - 2003/12/1

N2 - The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.

AB - The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.

KW - America

KW - Children

KW - Epilepsy

KW - Quality of life

KW - Surgery

KW - Validation

UR - http://www.scopus.com/inward/record.url?scp=0347418140&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0347418140&partnerID=8YFLogxK

U2 - 10.1016/j.yebeh.2003.08.012

DO - 10.1016/j.yebeh.2003.08.012

M3 - Article

VL - 4

SP - 680

EP - 691

JO - Epilepsy and Behavior

JF - Epilepsy and Behavior

SN - 1525-5050

IS - 6

ER -