Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients

Mark Sabaz, John A. Lawson, David R. Cairns, Michael S. Duchowny, Trevor J. Resnick, Patricia M. Dean, Anne M.E. Bye

Research output: Contribution to journalArticle

103 Scopus citations

Abstract

The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.

Original languageEnglish (US)
Pages (from-to)680-691
Number of pages12
JournalEpilepsy and Behavior
Volume4
Issue number6
DOIs
StatePublished - Dec 2003

Keywords

  • America
  • Children
  • Epilepsy
  • Quality of life
  • Surgery
  • Validation

ASJC Scopus subject areas

  • Clinical Neurology
  • Behavioral Neuroscience
  • Neurology

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    Sabaz, M., Lawson, J. A., Cairns, D. R., Duchowny, M. S., Resnick, T. J., Dean, P. M., & Bye, A. M. E. (2003). Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. Epilepsy and Behavior, 4(6), 680-691. https://doi.org/10.1016/j.yebeh.2003.08.012