Validation of a Disease-Specific Measure of Health-Related Quality of Life for Children with Cystic Fibrosis

Avani C. Modi, Alexandra L. Quittner

Research output: Contribution to journalArticle

123 Scopus citations

Abstract

Objective: The purpose of the current study was to evaluate the psychometric properties of the Cystic Fibrosis Questionnaire (CFQ)-Child version, a disease-specific health-related quality of life (HRQOL) measure for children with cystic fibrosis (CF). Method: The CFQ was administered to 84 children with CF, ranging in age from 7 to 13 years, and their parents. Results: Multitrait analyses indicated that a majority of items on the CFQ-Child correlated more highly with their hypothesized scale than a competing scale. Internal consistency coefficients were acceptable for all scales (Cronbach's α = .60-.76), with the exception of treatment burden (Cronbach's α = .44). Results also suggested strong convergence between child and parent-proxy reports on several scales of the CFQ. Conclusion: Results demonstrated that the CFQ-Child is a reliable and valid measure of HRQOL for children with CF.

Original languageEnglish (US)
Pages (from-to)535-545
Number of pages11
JournalJournal of pediatric psychology
Volume28
Issue number8
DOIs
StatePublished - Dec 1 2003

Keywords

  • Children
  • Cystic Fibrosis
  • Health-related quality of life
  • Validation

ASJC Scopus subject areas

  • Psychology(all)
  • Developmental and Educational Psychology

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