Urban women's preferences for learning of their mammogram result: A qualitative study

Erin N Marcus, Darlene Drummond, Noella Dietz

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Research suggests that communication of mammogram results is flawed for many low-income ethnic minority women. This study conducted four focus groups with low-income inner-city minority women (n=34). The goals of our project were: (1) to elucidate women's experiences learning of their result; (2) to elicit their preferences as to how this communication could be improved; and (3) to gather information to help inform the development of a new tool for communicating mammogram results. Salient themes included dissatisfaction with result communication; difficulty elucidating the meaning of a typical results notification letter; a preference for direct verbal communication of results and for print materials that included pictures, testimonials, and an action plan including a hotline to call with questions; and a strong interest in advance education about the likelihood of having to return for additional follow up. Video and other programs to inform patients before the test about what happens after may improve patient satisfaction and enhance women's understanding of their personal result and follow up plan.

Original languageEnglish
Pages (from-to)156-164
Number of pages9
JournalJournal of Cancer Education
Volume27
Issue number1
DOIs
StatePublished - Mar 1 2012

Fingerprint

Learning
Communication
Hotlines
Focus Groups
Patient Satisfaction
Education
Research

Keywords

  • Adherence
  • Breast cancer screening
  • Follow-up
  • Health communication
  • Health literacy
  • Mammography
  • Risk communication
  • Underserved populations

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Oncology
  • Medicine(all)

Cite this

Urban women's preferences for learning of their mammogram result : A qualitative study. / Marcus, Erin N; Drummond, Darlene; Dietz, Noella.

In: Journal of Cancer Education, Vol. 27, No. 1, 01.03.2012, p. 156-164.

Research output: Contribution to journalArticle

@article{adcc8ed5ca1c4e5f9b00ac41d2668964,
title = "Urban women's preferences for learning of their mammogram result: A qualitative study",
abstract = "Research suggests that communication of mammogram results is flawed for many low-income ethnic minority women. This study conducted four focus groups with low-income inner-city minority women (n=34). The goals of our project were: (1) to elucidate women's experiences learning of their result; (2) to elicit their preferences as to how this communication could be improved; and (3) to gather information to help inform the development of a new tool for communicating mammogram results. Salient themes included dissatisfaction with result communication; difficulty elucidating the meaning of a typical results notification letter; a preference for direct verbal communication of results and for print materials that included pictures, testimonials, and an action plan including a hotline to call with questions; and a strong interest in advance education about the likelihood of having to return for additional follow up. Video and other programs to inform patients before the test about what happens after may improve patient satisfaction and enhance women's understanding of their personal result and follow up plan.",
keywords = "Adherence, Breast cancer screening, Follow-up, Health communication, Health literacy, Mammography, Risk communication, Underserved populations",
author = "Marcus, {Erin N} and Darlene Drummond and Noella Dietz",
year = "2012",
month = "3",
day = "1",
doi = "10.1007/s13187-011-0284-1",
language = "English",
volume = "27",
pages = "156--164",
journal = "Journal of Cancer Education",
issn = "0885-8195",
publisher = "Springer Publishing Company",
number = "1",

}

TY - JOUR

T1 - Urban women's preferences for learning of their mammogram result

T2 - A qualitative study

AU - Marcus, Erin N

AU - Drummond, Darlene

AU - Dietz, Noella

PY - 2012/3/1

Y1 - 2012/3/1

N2 - Research suggests that communication of mammogram results is flawed for many low-income ethnic minority women. This study conducted four focus groups with low-income inner-city minority women (n=34). The goals of our project were: (1) to elucidate women's experiences learning of their result; (2) to elicit their preferences as to how this communication could be improved; and (3) to gather information to help inform the development of a new tool for communicating mammogram results. Salient themes included dissatisfaction with result communication; difficulty elucidating the meaning of a typical results notification letter; a preference for direct verbal communication of results and for print materials that included pictures, testimonials, and an action plan including a hotline to call with questions; and a strong interest in advance education about the likelihood of having to return for additional follow up. Video and other programs to inform patients before the test about what happens after may improve patient satisfaction and enhance women's understanding of their personal result and follow up plan.

AB - Research suggests that communication of mammogram results is flawed for many low-income ethnic minority women. This study conducted four focus groups with low-income inner-city minority women (n=34). The goals of our project were: (1) to elucidate women's experiences learning of their result; (2) to elicit their preferences as to how this communication could be improved; and (3) to gather information to help inform the development of a new tool for communicating mammogram results. Salient themes included dissatisfaction with result communication; difficulty elucidating the meaning of a typical results notification letter; a preference for direct verbal communication of results and for print materials that included pictures, testimonials, and an action plan including a hotline to call with questions; and a strong interest in advance education about the likelihood of having to return for additional follow up. Video and other programs to inform patients before the test about what happens after may improve patient satisfaction and enhance women's understanding of their personal result and follow up plan.

KW - Adherence

KW - Breast cancer screening

KW - Follow-up

KW - Health communication

KW - Health literacy

KW - Mammography

KW - Risk communication

KW - Underserved populations

UR - http://www.scopus.com/inward/record.url?scp=84863725192&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84863725192&partnerID=8YFLogxK

U2 - 10.1007/s13187-011-0284-1

DO - 10.1007/s13187-011-0284-1

M3 - Article

C2 - 22072125

AN - SCOPUS:84863725192

VL - 27

SP - 156

EP - 164

JO - Journal of Cancer Education

JF - Journal of Cancer Education

SN - 0885-8195

IS - 1

ER -