Abstract
Both primary care providers and subspecialists in pediatrics encounter families who are actively involved in the diagnosis and treatment of their children. Parents of children with an autism spectrum disorder in particular are often aware of scientific issues, and their expertise and desire for a medical cure for autism sometimes put them at odds with the medical team. We investigated the role of parents and advocates in autism research and treatment over the last 50 years. Our review of scientific publications and archival sources documents how parents and advocacy groups have done the following: (1) organized research funding; (2) constructed clinical research networks; (3) suggested new avenues for research; (4) popularized empirically based therapies; and (5) anticipated paradigmatic shifts in the understanding of autism. We believe that this historical account will help pediatricians and researchers recognize that families can contribute to expert understanding of complex medical conditions such as autism and that the existence of partnerships with families of children with autism is a critical component of future research and treatment programs.
| Original language | English |
|---|---|
| Pages (from-to) | 392-398 |
| Number of pages | 7 |
| Journal | Archives of Pediatrics and Adolescent Medicine |
| Volume | 161 |
| Issue number | 4 |
| DOIs | |
| State | Published - Apr 1 2007 |
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ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
Cite this
Understanding autism : Parents and pediatricians in historical perspective. / Silverman, Chloe; Brosco, Jeffrey P.
In: Archives of Pediatrics and Adolescent Medicine, Vol. 161, No. 4, 01.04.2007, p. 392-398.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Understanding autism
T2 - Parents and pediatricians in historical perspective
AU - Silverman, Chloe
AU - Brosco, Jeffrey P
PY - 2007/4/1
Y1 - 2007/4/1
N2 - Both primary care providers and subspecialists in pediatrics encounter families who are actively involved in the diagnosis and treatment of their children. Parents of children with an autism spectrum disorder in particular are often aware of scientific issues, and their expertise and desire for a medical cure for autism sometimes put them at odds with the medical team. We investigated the role of parents and advocates in autism research and treatment over the last 50 years. Our review of scientific publications and archival sources documents how parents and advocacy groups have done the following: (1) organized research funding; (2) constructed clinical research networks; (3) suggested new avenues for research; (4) popularized empirically based therapies; and (5) anticipated paradigmatic shifts in the understanding of autism. We believe that this historical account will help pediatricians and researchers recognize that families can contribute to expert understanding of complex medical conditions such as autism and that the existence of partnerships with families of children with autism is a critical component of future research and treatment programs.
AB - Both primary care providers and subspecialists in pediatrics encounter families who are actively involved in the diagnosis and treatment of their children. Parents of children with an autism spectrum disorder in particular are often aware of scientific issues, and their expertise and desire for a medical cure for autism sometimes put them at odds with the medical team. We investigated the role of parents and advocates in autism research and treatment over the last 50 years. Our review of scientific publications and archival sources documents how parents and advocacy groups have done the following: (1) organized research funding; (2) constructed clinical research networks; (3) suggested new avenues for research; (4) popularized empirically based therapies; and (5) anticipated paradigmatic shifts in the understanding of autism. We believe that this historical account will help pediatricians and researchers recognize that families can contribute to expert understanding of complex medical conditions such as autism and that the existence of partnerships with families of children with autism is a critical component of future research and treatment programs.
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UR - http://www.scopus.com/inward/citedby.url?scp=34147186908&partnerID=8YFLogxK
U2 - 10.1001/archpedi.161.4.392
DO - 10.1001/archpedi.161.4.392
M3 - Article
C2 - 17404137
AN - SCOPUS:34147186908
VL - 161
SP - 392
EP - 398
JO - JAMA Pediatrics
JF - JAMA Pediatrics
SN - 2168-6203
IS - 4
ER -