Transition from paediatric to adult cystic fibrosis care: A developmental framework

Currently, there are no consistent procedures for transitioning adolescents from paediatric to adult cystic fibrosis (CF) care, and little empirical evidence exists on the best practices for transition. Given increased survival among patients with CF, a more formalised transition process is necessary to ensure continuity of care across the lifespan. This chapter reviews current transition practices and makes specific recommendations for more gradual, developmentally appropriate procedures involving all members of the CF care team. To ensure successful transition, providers should be aware of the normative milestones of adolescence and emerging adulthood, and how CF disrupts youths' navigation of these milestones. Age-appropriate guidance should be given to adolescents and their families in gradual doses, beginning in early childhood and continuing until early adulthood. Importantly, the success of these recommendations depends on clear and active communication between paediatric and adult care teams, parents, and adolescents.