Transition from paediatric to adult cystic fibrosis care

A developmental framework

Anjana S. Madan, Adrianne N. Alpern, Alexandra Quittner

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Currently, there are no consistent procedures for transitioning adolescents from paediatric to adult cystic fibrosis (CF) care, and little empirical evidence exists on the best practices for transition. Given increased survival among patients with CF, a more formalised transition process is necessary to ensure continuity of care across the lifespan. This chapter reviews current transition practices and makes specific recommendations for more gradual, developmentally appropriate procedures involving all members of the CF care team. To ensure successful transition, providers should be aware of the normative milestones of adolescence and emerging adulthood, and how CF disrupts youths' navigation of these milestones. Age-appropriate guidance should be given to adolescents and their families in gradual doses, beginning in early childhood and continuing until early adulthood. Importantly, the success of these recommendations depends on clear and active communication between paediatric and adult care teams, parents, and adolescents.

Original languageEnglish
Pages (from-to)272-285
Number of pages14
JournalEuropean Respiratory Monograph
Volume64
DOIs
StatePublished - Jan 1 2014

Fingerprint

Cystic Fibrosis
Pediatrics
Continuity of Patient Care
Practice Guidelines
Parents
Communication
Survival

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

Cite this

Transition from paediatric to adult cystic fibrosis care : A developmental framework. / Madan, Anjana S.; Alpern, Adrianne N.; Quittner, Alexandra.

In: European Respiratory Monograph, Vol. 64, 01.01.2014, p. 272-285.

Research output: Contribution to journalArticle

Madan, Anjana S. ; Alpern, Adrianne N. ; Quittner, Alexandra. / Transition from paediatric to adult cystic fibrosis care : A developmental framework. In: European Respiratory Monograph. 2014 ; Vol. 64. pp. 272-285.
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