The Miami pediatric quality of life questionnaire: parent scale.

F. Daniel Armstrong, S. R. Toledano, K. Miloslavich, L. Lackman-Zeman, J. D. Levy, C. L. Gay, W. B. Schuman, P. E. Fishkin

Research output: Contribution to journalArticle

65 Scopus citations

Abstract

Because there were limited measures available to assess health-related quality of life (HRQL) in children with chronic illnesses, this study was initiated to develop an empirically derived questionnaire for use in evaluating HRQL issues in children treated for cancer. Extensive interviews were conducted with 30 families of children with cancer, 10 of pre-school age, 10 of school age and 10 of adolescent age. Responses were videotaped and transcribed, then categorized to develop a pool of 56 items, which were administered to 132 children with cancer and to their parents. This report focuses on parental responses to objective items and ratings of importance of each of these items. Three primary categories, Self-Competence, Emotional Stability and Social Competence, were identified, each of which had solid internal consistency, sensitivity and reliability across 1-month intervals. The measure demonstrated the ability to discriminate between children with different types of cancer, offers an alternative to measures relying on expert judgment to assess HRQL and may lead to greater inclusion of psychological and social concerns as primary factors in determining HRQL in children participating in clinical trials.

Original languageEnglish
Pages (from-to)11-17
Number of pages7
JournalInternational journal of cancer. Supplement = Journal international du cancer. Supplement
Volume12
StatePublished - Jan 1 1999

Fingerprint Dive into the research topics of 'The Miami pediatric quality of life questionnaire: parent scale.'. Together they form a unique fingerprint.

  • Cite this

    Daniel Armstrong, F., Toledano, S. R., Miloslavich, K., Lackman-Zeman, L., Levy, J. D., Gay, C. L., Schuman, W. B., & Fishkin, P. E. (1999). The Miami pediatric quality of life questionnaire: parent scale. International journal of cancer. Supplement = Journal international du cancer. Supplement, 12, 11-17.