Quality of life of family caregivers 5 years after a relative's cancer diagnosis: Follow-up of the national quality of life survey for caregivers

Youngmee Kim, Rachel L. Spillers, Daniel L. Hall

Research output: Contribution to journalArticle

76 Citations (Scopus)

Abstract

Background. Although cancer has been considered as a chronic disease for those diagnosed, the long-term impact of cancer on the family caregivers' quality of life (QOL) remains unknown. Thus, the current study aimed: (a) to characterize family caregivers of cancer survivors, (b) to describe the multidimensional aspects of QOL of family caregivers of cancer survivors, and (c) to identify demographic and caregiving experience factors that may play significant roles in the caregivers' QOL around 5 years after the relative's initial diagnosis. Methods. A total of 1218 caregivers participated in the 5-year follow-up nationwide QOL Survey for Caregivers. Demographics and caregiving experiences were measured 2 years post-diagnosis of their relative's cancer. Multidimensional aspects of QOL were assessed, including mental and physical health, psychological adjustment, and spirituality at 5 years post-diagnosis. Results. Three groups of caregivers were identified: former caregivers due to the recipients being in remission, former caregivers whose recipients were deceased, and current caregivers. Current caregivers reported worst levels of QOL. Bereaved caregivers reported lower levels of psychological and spiritual adjustment than former caregivers whose recipients were in remission. In addition, caregivers' age and stress were consistent predictors of QOL across three caregiver groups at 5 years post-diagnosis. Conclusions. The findings help to increase evidence-based awareness of the long-term impact of cancer on the family caregivers' QOL. Findings also have implications for developing programs, whereby family caregivers in the various phases of caregivership will benefit by improving their QOL.

Original languageEnglish
Pages (from-to)273-281
Number of pages9
JournalPsycho-Oncology
Volume21
Issue number3
DOIs
StatePublished - Mar 1 2012

Fingerprint

Caregivers
Quality of Life
Neoplasms
Surveys and Questionnaires
Survivors
Demography
Spirituality
Mental Health
Chronic Disease

Keywords

  • bereavement
  • cancer
  • caregivers
  • long-term survivorship
  • quality of life

ASJC Scopus subject areas

  • Oncology
  • Psychiatry and Mental health
  • Experimental and Cognitive Psychology

Cite this

Quality of life of family caregivers 5 years after a relative's cancer diagnosis : Follow-up of the national quality of life survey for caregivers. / Kim, Youngmee; Spillers, Rachel L.; Hall, Daniel L.

In: Psycho-Oncology, Vol. 21, No. 3, 01.03.2012, p. 273-281.

Research output: Contribution to journalArticle

@article{a2b3e05ecf86483b93a1049bc4e5635d,
title = "Quality of life of family caregivers 5 years after a relative's cancer diagnosis: Follow-up of the national quality of life survey for caregivers",
abstract = "Background. Although cancer has been considered as a chronic disease for those diagnosed, the long-term impact of cancer on the family caregivers' quality of life (QOL) remains unknown. Thus, the current study aimed: (a) to characterize family caregivers of cancer survivors, (b) to describe the multidimensional aspects of QOL of family caregivers of cancer survivors, and (c) to identify demographic and caregiving experience factors that may play significant roles in the caregivers' QOL around 5 years after the relative's initial diagnosis. Methods. A total of 1218 caregivers participated in the 5-year follow-up nationwide QOL Survey for Caregivers. Demographics and caregiving experiences were measured 2 years post-diagnosis of their relative's cancer. Multidimensional aspects of QOL were assessed, including mental and physical health, psychological adjustment, and spirituality at 5 years post-diagnosis. Results. Three groups of caregivers were identified: former caregivers due to the recipients being in remission, former caregivers whose recipients were deceased, and current caregivers. Current caregivers reported worst levels of QOL. Bereaved caregivers reported lower levels of psychological and spiritual adjustment than former caregivers whose recipients were in remission. In addition, caregivers' age and stress were consistent predictors of QOL across three caregiver groups at 5 years post-diagnosis. Conclusions. The findings help to increase evidence-based awareness of the long-term impact of cancer on the family caregivers' QOL. Findings also have implications for developing programs, whereby family caregivers in the various phases of caregivership will benefit by improving their QOL.",
keywords = "bereavement, cancer, caregivers, long-term survivorship, quality of life",
author = "Youngmee Kim and Spillers, {Rachel L.} and Hall, {Daniel L.}",
year = "2012",
month = "3",
day = "1",
doi = "10.1002/pon.1888",
language = "English",
volume = "21",
pages = "273--281",
journal = "Psycho-Oncology",
issn = "1057-9249",
publisher = "John Wiley and Sons Ltd",
number = "3",

}

TY - JOUR

T1 - Quality of life of family caregivers 5 years after a relative's cancer diagnosis

T2 - Follow-up of the national quality of life survey for caregivers

AU - Kim, Youngmee

AU - Spillers, Rachel L.

AU - Hall, Daniel L.

PY - 2012/3/1

Y1 - 2012/3/1

N2 - Background. Although cancer has been considered as a chronic disease for those diagnosed, the long-term impact of cancer on the family caregivers' quality of life (QOL) remains unknown. Thus, the current study aimed: (a) to characterize family caregivers of cancer survivors, (b) to describe the multidimensional aspects of QOL of family caregivers of cancer survivors, and (c) to identify demographic and caregiving experience factors that may play significant roles in the caregivers' QOL around 5 years after the relative's initial diagnosis. Methods. A total of 1218 caregivers participated in the 5-year follow-up nationwide QOL Survey for Caregivers. Demographics and caregiving experiences were measured 2 years post-diagnosis of their relative's cancer. Multidimensional aspects of QOL were assessed, including mental and physical health, psychological adjustment, and spirituality at 5 years post-diagnosis. Results. Three groups of caregivers were identified: former caregivers due to the recipients being in remission, former caregivers whose recipients were deceased, and current caregivers. Current caregivers reported worst levels of QOL. Bereaved caregivers reported lower levels of psychological and spiritual adjustment than former caregivers whose recipients were in remission. In addition, caregivers' age and stress were consistent predictors of QOL across three caregiver groups at 5 years post-diagnosis. Conclusions. The findings help to increase evidence-based awareness of the long-term impact of cancer on the family caregivers' QOL. Findings also have implications for developing programs, whereby family caregivers in the various phases of caregivership will benefit by improving their QOL.

AB - Background. Although cancer has been considered as a chronic disease for those diagnosed, the long-term impact of cancer on the family caregivers' quality of life (QOL) remains unknown. Thus, the current study aimed: (a) to characterize family caregivers of cancer survivors, (b) to describe the multidimensional aspects of QOL of family caregivers of cancer survivors, and (c) to identify demographic and caregiving experience factors that may play significant roles in the caregivers' QOL around 5 years after the relative's initial diagnosis. Methods. A total of 1218 caregivers participated in the 5-year follow-up nationwide QOL Survey for Caregivers. Demographics and caregiving experiences were measured 2 years post-diagnosis of their relative's cancer. Multidimensional aspects of QOL were assessed, including mental and physical health, psychological adjustment, and spirituality at 5 years post-diagnosis. Results. Three groups of caregivers were identified: former caregivers due to the recipients being in remission, former caregivers whose recipients were deceased, and current caregivers. Current caregivers reported worst levels of QOL. Bereaved caregivers reported lower levels of psychological and spiritual adjustment than former caregivers whose recipients were in remission. In addition, caregivers' age and stress were consistent predictors of QOL across three caregiver groups at 5 years post-diagnosis. Conclusions. The findings help to increase evidence-based awareness of the long-term impact of cancer on the family caregivers' QOL. Findings also have implications for developing programs, whereby family caregivers in the various phases of caregivership will benefit by improving their QOL.

KW - bereavement

KW - cancer

KW - caregivers

KW - long-term survivorship

KW - quality of life

UR - http://www.scopus.com/inward/record.url?scp=84863234931&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84863234931&partnerID=8YFLogxK

U2 - 10.1002/pon.1888

DO - 10.1002/pon.1888

M3 - Article

C2 - 22383269

AN - SCOPUS:84863234931

VL - 21

SP - 273

EP - 281

JO - Psycho-Oncology

JF - Psycho-Oncology

SN - 1057-9249

IS - 3

ER -