Prioritizing treatment outcomes: Head and neck cancer patients versus nonpatients

Marcy A. List, Judith Lee Rutherford, John Stracks, Barbara Roa Pauloski, Jerilyn A. Logemann, Donna Lundy, Paula Sullivan, William Goodwin, Merrill Kies, Everett E. Vokes

Research output: Contribution to journalArticle

43 Scopus citations

Abstract

Background. Treatment decisions in head and neck cancer (HNC) might involve consideration of uncertain tradeoffs of one late effect against another or increasing toxicity or residual impairment for increased chance of survival. Understanding how patients prioritize potential outcomes, as well as whether these preferences are similar to those of nonpatients, is important to informed decision making and treatment planning. Methods. Two hundred forty-seven newly diagnosed HNC patients from nine institutions and 131 nonpatients rank ordered a set of 12 potential treatment outcomes (eg, cure, being able to swallow, normal voice) from highest (1) to lowest (12). Results. Patients and nonpatients were similar with respect to the three items most frequently ranked in the top three, that is, "being cured of cancer," "living as long as possible," and "having no pain," in that order. In contrast, patients more frequently ranked "cure" (90% vs 80%) and less frequently ranked "no pain" (34% vs 52%) in the top three. Conclusions. Survival seems to be of paramount importance to both patient and nonpatient groups, overshadowing associated toxicities and potential dysfunction. At the same time, patients may be more willing than nonpatients to undergo aggressive treatments and endure acute distress in the interest of potential long-term gains (ie, cure or longer survival).

Original languageEnglish (US)
Pages (from-to)163-170
Number of pages8
JournalHead and Neck
Volume26
Issue number2
DOIs
StatePublished - Feb 1 2004

Keywords

  • Head and neck cancer
  • Patient priorities
  • Patients versus nonpatients

ASJC Scopus subject areas

  • Otorhinolaryngology

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  • Cite this

    List, M. A., Rutherford, J. L., Stracks, J., Pauloski, B. R., Logemann, J. A., Lundy, D., Sullivan, P., Goodwin, W., Kies, M., & Vokes, E. E. (2004). Prioritizing treatment outcomes: Head and neck cancer patients versus nonpatients. Head and Neck, 26(2), 163-170. https://doi.org/10.1002/hed.10367