Patient and Family Participation in Genetic Research Studies

Chantelle Wolpert, Amy Baryk Crunch, Susan Estabrooks Hahn

Research output: Chapter in Book/Report/Conference proceedingChapter

Original languageEnglish (US)
Title of host publicationGenetic Analysis of Complex Diseases
Subtitle of host publicationSecond Edition
PublisherJohn Wiley & Sons, Inc.
Number of pages35
ISBN (Print)0471089524, 9780471089520
StatePublished - Oct 7 2005
Externally publishedYes


  • Family follow-up and DNA banking facilities
  • Initiating family study and informed-consent process
  • Patient and family participation in genetic studies

ASJC Scopus subject areas

  • Biochemistry, Genetics and Molecular Biology(all)

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