Parent Perspectives on Augmentative and Alternative Communication Integration for Children With Fragile X Syndrome: It Starts in the Home

Michelle Schladant, Monica Dowling

Research output: Contribution to journalArticlepeer-review

Abstract

Many children with fragile X syndrome (FXS) have complex communication needs and may benefit from augmentative and alternative communication (AAC). This qualitative study explored how four mother-child dyads used AAC in the home. Data were collected using participant observations, open-ended interviews, and record reviews, and analyzed using grounded theory methods. Findings revealed that mothers found AAC to be a useful tool for addressing their children's complex communication needs, but practical and personal factors impacted its use in the home. This study sheds light on how mothers of children with FXS view and utilize AAC as a way to promote communication at home. Understanding parental perspectives can help to guide professionals in planning appropriate AAC interventions specific to FXS.

Original languageEnglish (US)
Pages (from-to)409-421
Number of pages13
JournalIntellectual and Developmental Disabilities
Volume58
Issue number5
DOIs
StatePublished - Oct 1 2020

Keywords

  • augmentative communication
  • complex communication needs
  • fragile X syndrome
  • parent perspectives

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Education
  • Developmental and Educational Psychology
  • Community and Home Care
  • Psychiatry and Mental health

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