Measurement of the role of families in prevention and adaptation to HIV/AIDS

Willo Pequegnat, Laurie J. Bauman, James H. Bray, Ralph DiClemente, Colleen DiIorio, Sue Keir Hoppe, Loretta Sweet Jemmott, Beatrice Krauss, Margaret Miles, Roberta Paikoff, Bruce Rapkin, Mary Jane Rotheram-Borus, José Szapocznik

Research output: Contribution to journalReview article

43 Scopus citations


HIV is a family disease. Family research in HIV is challenging because of complexities of family measurement, the range of family constellations across cultures, and the issues specific to HIV-affected families. A Consortium of NIMH-funded investigators is conducting HIV research on families - defined as networks of mutual commitments. A procedure for identifying the "family" is proposed. This article reviews assessment strategies from two research traditions, both of which have been greatly concerned with social context: family assessment tradition - family membership, parenting, and interactional dynamics; HIV/AIDS research tradition - HIV-relevant constructs generalized to minority families. Initially, a systematic procedure for defining family membership is provided. Constructs and measures derived from the family assessment tradition are described, including self-report and observational procedures. Constructs and measures of relevance to family research that originated in the HIV/AIDS research tradition are described: HIV knowledge, stigma, disclosure, and social support. Constructs presented derive from the Consortium's research on the role of families in prevention and adaptation to HIV/AIDS. Most of the research conducted by the Consortium has taken place with inner-city, minority, heterosexual families. By informing the selection of constructs and measures relevant to investigating the role of families in HIV prevention, and adaptation to living with HIV/AIDS, it is the Consortium's intention to enhance the quality and quantity of research at the intersection of families and HIV/AIDS.

Original languageEnglish (US)
Pages (from-to)1-19
Number of pages19
JournalAIDS and Behavior
Issue number1
StatePublished - Jan 2001
Externally publishedYes



  • Families
  • Measurement
  • Minorities

ASJC Scopus subject areas

  • Social Psychology
  • Public Health, Environmental and Occupational Health
  • Infectious Diseases

Cite this

Pequegnat, W., Bauman, L. J., Bray, J. H., DiClemente, R., DiIorio, C., Hoppe, S. K., Jemmott, L. S., Krauss, B., Miles, M., Paikoff, R., Rapkin, B., Rotheram-Borus, M. J., & Szapocznik, J. (2001). Measurement of the role of families in prevention and adaptation to HIV/AIDS. AIDS and Behavior, 5(1), 1-19.