Maintaining Participation and Momentum in Longitudinal Research Involving High-Risk Families

Ann L. Graziotti, Jane Hammond, Daniel S Messinger, Carla M. Bann, Cynthia Miller-Loncar, Jean E. Twomey, Charlotte Bursi, Eunice Woldt, Jay Ann Nelson, Debra Fleischmann, Barbara Alexander

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

Purpose: The purpose of the current study was to identify and describe strategies available to optimize retention of a high-risk research cohort and assist in the recovery of study participants following participant dropout. Design and Methods: The Maternal Lifestyle Study (MLS), which investigated the effects of prenatal substance exposure (cocaine or opiates) on child outcome, is a prospective longitudinal follow-up study that extended from birth through 15 years of age. Retention strategies to maximize participation and factors that might negatively impact compliance were examined over the course of five follow-up phases. Findings: At the conclusion of the 15-year visits, MLS had successfully maintained compliance at 76%. Retention rates did not differ by exposure group. Conclusions: Maintaining ongoing participation of enrolled study subjects is a critical element of any successful longitudinal study. Strategies that can be used to reengage and maintain participants in longitudinal research include persistence, flexibility with scheduling, home visits, long-distance trips, increased incentives, and development of a computerized tracking system. Establishing rapport with families and ensuring confidentiality contributed to overall participant retention. The use of multiple tracking techniques is essential. Clinical Relevance: Researchers are challenged to maintain participants in longitudinal studies to ensure the integrity of their research.

Original languageEnglish
Pages (from-to)120-126
Number of pages7
JournalJournal of Nursing Scholarship
Volume44
Issue number2
DOIs
StatePublished - Jun 1 2012

Fingerprint

Compliance
Longitudinal Studies
Life Style
Opiate Alkaloids
Research
Mothers
House Calls
Confidentiality
Cocaine
Motivation
Research Personnel
Parturition

Keywords

  • Compliance
  • Longitudinal research
  • Participant retention
  • Tracking

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Maintaining Participation and Momentum in Longitudinal Research Involving High-Risk Families. / Graziotti, Ann L.; Hammond, Jane; Messinger, Daniel S; Bann, Carla M.; Miller-Loncar, Cynthia; Twomey, Jean E.; Bursi, Charlotte; Woldt, Eunice; Ann Nelson, Jay; Fleischmann, Debra; Alexander, Barbara.

In: Journal of Nursing Scholarship, Vol. 44, No. 2, 01.06.2012, p. 120-126.

Research output: Contribution to journalArticle

Graziotti, AL, Hammond, J, Messinger, DS, Bann, CM, Miller-Loncar, C, Twomey, JE, Bursi, C, Woldt, E, Ann Nelson, J, Fleischmann, D & Alexander, B 2012, 'Maintaining Participation and Momentum in Longitudinal Research Involving High-Risk Families', Journal of Nursing Scholarship, vol. 44, no. 2, pp. 120-126. https://doi.org/10.1111/j.1547-5069.2012.01439.x
Graziotti, Ann L. ; Hammond, Jane ; Messinger, Daniel S ; Bann, Carla M. ; Miller-Loncar, Cynthia ; Twomey, Jean E. ; Bursi, Charlotte ; Woldt, Eunice ; Ann Nelson, Jay ; Fleischmann, Debra ; Alexander, Barbara. / Maintaining Participation and Momentum in Longitudinal Research Involving High-Risk Families. In: Journal of Nursing Scholarship. 2012 ; Vol. 44, No. 2. pp. 120-126.
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