Living with dementia: Lay definitions of Alzheimer's disease among African American caregivers and sufferers

Linda L Belgrave, G. Janice Allen-Kelsey, Kenneth J. Smith, Maritza C. Flores

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

While the medical world aggressively pursues scientific knowledge about Alzheimer's disease, sufferers and caregivers live with this ailment, not as patients, but as people going about their lives, needing and providing care. This article reports explanations of Alzheimer's from the perspectives of African American family caregivers and sufferers. Data were collected from thirty-six families using participant observation and focus group interviews. Although caregivers sought and used medical expertise, their explanations of Alzheimer's were not only nonmedical, but not necessarily explanations of illness per se. Alzheimer's was presented instead as a way of being, pre-dominantly characterized by views of the sufferer as childlike and by issues of continuity/discontinuity, though some saw Alzheimer's as part of a larger picture.

Original languageEnglish (US)
JournalSymbolic Interaction
Volume27
Issue number2
StatePublished - Mar 2004

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dementia
African Americans
Caregivers
caregiver
Dementia
Alzheimer Disease
Focus Groups
participant observation
continuity
expertise
illness
Observation
Interviews
interview
knowledge
American
Group

ASJC Scopus subject areas

  • Sociology and Political Science

Cite this

Living with dementia : Lay definitions of Alzheimer's disease among African American caregivers and sufferers. / Belgrave, Linda L; Allen-Kelsey, G. Janice; Smith, Kenneth J.; Flores, Maritza C.

In: Symbolic Interaction, Vol. 27, No. 2, 03.2004.

Research output: Contribution to journalArticle

Belgrave, Linda L ; Allen-Kelsey, G. Janice ; Smith, Kenneth J. ; Flores, Maritza C. / Living with dementia : Lay definitions of Alzheimer's disease among African American caregivers and sufferers. In: Symbolic Interaction. 2004 ; Vol. 27, No. 2.
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