Linking census data with electronic medical records for clinical research: A systematic review

Research output: Contribution to journalReview article

Abstract

This paper considers the evidence documenting the linkage of EMRs and census when conducting clinical research. Our systematic review included 25 studies. They collected information on an average of 434,541 study participants and 72% of the studies focused on adult populations. The findings include that the most common diseases evaluated were obesity, cancer, and diabetes. The most commonly used census variables were location, income, and education. Twelve of the studies linked only the census and the EMR, while 13 studies linked the census, EMR, and additional research resources. This linkage was most prevalently used to describe a problem rather than for quality improvement purposes. Efforts should be channeled to increase the use of the census for health disparities and social determinants of health.

Original languageEnglish (US)
Pages (from-to)105-118
Number of pages14
JournalJournal of Economic and Social Measurement
Volume43
Issue number1-2
DOIs
StatePublished - Jan 1 2018

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census
electronics
health
chronic illness
cancer
determinants
Disease
income
resources
evidence
education

Keywords

  • Census
  • electronic medical record
  • linking data
  • social determinants of health
  • systematic review

ASJC Scopus subject areas

  • Social Sciences(all)

Cite this

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abstract = "This paper considers the evidence documenting the linkage of EMRs and census when conducting clinical research. Our systematic review included 25 studies. They collected information on an average of 434,541 study participants and 72{\%} of the studies focused on adult populations. The findings include that the most common diseases evaluated were obesity, cancer, and diabetes. The most commonly used census variables were location, income, and education. Twelve of the studies linked only the census and the EMR, while 13 studies linked the census, EMR, and additional research resources. This linkage was most prevalently used to describe a problem rather than for quality improvement purposes. Efforts should be channeled to increase the use of the census for health disparities and social determinants of health.",
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