Identifiability and privacy in pluripotent stem cell research

Rosario Isasi, Peter W. Andrews, Jay M. Baltz, Annelien L. Bredenoord, Paul Burton, Ing Ming Chiu, Sara Chandros Hull, Ji Won Jung, Andreas Kurtz, Geoffrey Lomax, Tenneille Ludwig, Michael McDonald, Clive Morris, Huck Hui Ng, Heather Rooke, Alka Sharma, Glyn N. Stacey, Clare Williams, Fanyi Zeng, Bartha Maria Knoppers

Research output: Contribution to journalComment/debate

26 Scopus citations

Abstract

Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Original languageEnglish (US)
Pages (from-to)427-430
Number of pages4
JournalCell Stem Cell
Volume14
Issue number4
DOIs
StatePublished - Apr 3 2014
Externally publishedYes

ASJC Scopus subject areas

  • Molecular Medicine
  • Genetics
  • Cell Biology

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  • Cite this

    Isasi, R., Andrews, P. W., Baltz, J. M., Bredenoord, A. L., Burton, P., Chiu, I. M., Hull, S. C., Jung, J. W., Kurtz, A., Lomax, G., Ludwig, T., McDonald, M., Morris, C., Ng, H. H., Rooke, H., Sharma, A., Stacey, G. N., Williams, C., Zeng, F., & Knoppers, B. M. (2014). Identifiability and privacy in pluripotent stem cell research. Cell Stem Cell, 14(4), 427-430. https://doi.org/10.1016/j.stem.2014.03.014