Identifiability and privacy in pluripotent stem cell research

Rosario Isasi; Peter W. Andrews; Jay M. Baltz; Annelien L. Bredenoord; Paul Burton; Ing Ming Chiu; Sara Chandros Hull; Ji Won Jung; Andreas Kurtz; Geoffrey Lomax; Tenneille Ludwig; Michael McDonald; Clive Morris; Huck Hui Ng; Heather Rooke; Alka Sharma; Glyn N. Stacey; Clare Williams; Fanyi Zeng; Bartha Maria Knoppers

doi:10.1016/j.stem.2014.03.014

Identifiability and privacy in pluripotent stem cell research

Rosario Isasi, Peter W. Andrews, Jay M. Baltz, Annelien L. Bredenoord, Paul Burton, Ing Ming Chiu, Sara Chandros Hull, Ji Won Jung, Andreas Kurtz, Geoffrey Lomax, Tenneille Ludwig, Michael McDonald, Clive Morris, Huck Hui Ng, Heather Rooke, Alka Sharma, Glyn N. Stacey, Clare Williams, Fanyi Zeng, Bartha Maria Knoppers

Research output: Contribution to journal › Comment/debate › peer-review

31 Scopus citations

Abstract

Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Original language	English (US)
Pages (from-to)	427-430
Number of pages	4
Journal	Cell Stem Cell
Volume	14
Issue number	4
DOIs	https://doi.org/10.1016/j.stem.2014.03.014
State	Published - Apr 3 2014
Externally published	Yes

ASJC Scopus subject areas

Molecular Medicine
Genetics
Cell Biology

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10.1016/j.stem.2014.03.014

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Isasi, R., Andrews, P. W., Baltz, J. M., Bredenoord, A. L., Burton, P., Chiu, I. M., Hull, S. C., Jung, J. W., Kurtz, A., Lomax, G., Ludwig, T., McDonald, M., Morris, C., Ng, H. H., Rooke, H., Sharma, A., Stacey, G. N., Williams, C., Zeng, F., & Knoppers, B. M. (2014). Identifiability and privacy in pluripotent stem cell research. Cell Stem Cell, 14(4), 427-430. https://doi.org/10.1016/j.stem.2014.03.014

Identifiability and privacy in pluripotent stem cell research. / Isasi, Rosario; Andrews, Peter W.; Baltz, Jay M.; Bredenoord, Annelien L.; Burton, Paul; Chiu, Ing Ming; Hull, Sara Chandros; Jung, Ji Won; Kurtz, Andreas; Lomax, Geoffrey; Ludwig, Tenneille; McDonald, Michael; Morris, Clive; Ng, Huck Hui; Rooke, Heather; Sharma, Alka; Stacey, Glyn N.; Williams, Clare; Zeng, Fanyi; Knoppers, Bartha Maria.

In: Cell Stem Cell, Vol. 14, No. 4, 03.04.2014, p. 427-430.

Research output: Contribution to journal › Comment/debate › peer-review

Isasi, R, Andrews, PW, Baltz, JM, Bredenoord, AL, Burton, P, Chiu, IM, Hull, SC, Jung, JW, Kurtz, A, Lomax, G, Ludwig, T, McDonald, M, Morris, C, Ng, HH, Rooke, H, Sharma, A, Stacey, GN, Williams, C, Zeng, F & Knoppers, BM 2014, 'Identifiability and privacy in pluripotent stem cell research', Cell Stem Cell, vol. 14, no. 4, pp. 427-430. https://doi.org/10.1016/j.stem.2014.03.014

Isasi, Rosario ; Andrews, Peter W. ; Baltz, Jay M. ; Bredenoord, Annelien L. ; Burton, Paul ; Chiu, Ing Ming ; Hull, Sara Chandros ; Jung, Ji Won ; Kurtz, Andreas ; Lomax, Geoffrey ; Ludwig, Tenneille ; McDonald, Michael ; Morris, Clive ; Ng, Huck Hui ; Rooke, Heather ; Sharma, Alka ; Stacey, Glyn N. ; Williams, Clare ; Zeng, Fanyi ; Knoppers, Bartha Maria. / Identifiability and privacy in pluripotent stem cell research. In: Cell Stem Cell. 2014 ; Vol. 14, No. 4. pp. 427-430.

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abstract = "Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.",

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note = "Funding Information: We are grateful to the International Stem Cell Forum and the Stem Cell Network of Canada for funding support. The opinions expressed above are those of the authors alone.",

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AU - Sharma, Alka

AU - Stacey, Glyn N.

AU - Williams, Clare

AU - Zeng, Fanyi

AU - Knoppers, Bartha Maria

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Identifiability and privacy in pluripotent stem cell research

Abstract

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