Health-related quality of life and adaptive behaviors of adolescents with sickle cell disease: Stress processing moderators

Maisa S. Ziadni, Chavis A. Patterson, Elizabeth R. Pulgarón, M. Renée Robinson, Lamia P. Barakat

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

The objective of this study was to examine resilience among adolescents with sickle cell disease (SCD), focusing on the interaction of health-related quality of life with stress processing to explain adaptive behavior. Forty-four adolescents with SCD completed paper-andpencil measures of health-related quality of life, appraisals (hope), pain coping strategies (e.g. adherence), and adaptive behavior. Self-reported health-related quality of life was significantly associated with adaptive behavior, as was adherence. Findings for moderation were mixed. Pain coping strategies moderated the association of healthrelated quality of life with adaptive behavior such that at lower levels of Coping Strategies Questionnaire (CSQ) Adherence, better quality of life was associated with higher adaptive behavior. Similarly, at higher levels of hope, better quality of life was associated with higher adaptive behavior, and poorer quality of life was associated with lower adaptive behavior. Adolescents with SCD showed resilience, particularly in terms of personal adjustment, that may be explained by their appraisals and stress processing strategies. Interventions to support an optimistic or hopeful outlook and improve adherence to recommendations for medical management of sickle cell pain may result in improved resilience/adaptive behavior.

Original languageEnglish (US)
Pages (from-to)335-344
Number of pages10
JournalJournal of Clinical Psychology in Medical Settings
Volume18
Issue number4
DOIs
StatePublished - Dec 1 2011

Keywords

  • Adaptive behavior
  • Adolescents
  • Coping strategies
  • Sickle cell disease
  • Stress processing

ASJC Scopus subject areas

  • Clinical Psychology

Fingerprint Dive into the research topics of 'Health-related quality of life and adaptive behaviors of adolescents with sickle cell disease: Stress processing moderators'. Together they form a unique fingerprint.

Cite this