TY - JOUR
T1 - From Developing Guidelines to Implementing Legislation
T2 - Actions of the US Advisory Committee on Heritable Disorders in Newborns and Children Toward Advancing and Improving Newborn Screening
AU - Howell, R. Rodney
AU - Lloyd-Puryear, Michele A.
PY - 2010/4/1
Y1 - 2010/4/1
N2 - Federal advisory committees (or commissions, councils, or task forces) are created either by congressional action or a federal department to bring together a variety of viewpoints on specific policy issues. The committees or advisory bodies are generally directed to advise various bodies within the government, either by congressional mandate, government decree, or executive order. The committees are often created to aid the government in subject matters with difficult issues. In the Department of Health and Human Services (HHS), current advisory committees range from advising the Secretary, Department of Health and Human Services, on immunization practices, to organ donation, blood safety, to issues related to newborn and child screening. This article describes the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children. Its history offers insight into connection of the development of policy guidelines and the creation of legislation to implement that policy. Its current activities have affected and will continue to affect not only state newborn screening programs but also the policy and practice of screening children for heritable disorders.
AB - Federal advisory committees (or commissions, councils, or task forces) are created either by congressional action or a federal department to bring together a variety of viewpoints on specific policy issues. The committees or advisory bodies are generally directed to advise various bodies within the government, either by congressional mandate, government decree, or executive order. The committees are often created to aid the government in subject matters with difficult issues. In the Department of Health and Human Services (HHS), current advisory committees range from advising the Secretary, Department of Health and Human Services, on immunization practices, to organ donation, blood safety, to issues related to newborn and child screening. This article describes the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children. Its history offers insight into connection of the development of policy guidelines and the creation of legislation to implement that policy. Its current activities have affected and will continue to affect not only state newborn screening programs but also the policy and practice of screening children for heritable disorders.
KW - newborn screening
KW - policy development
KW - rare disorders
UR - http://www.scopus.com/inward/record.url?scp=77649158402&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=77649158402&partnerID=8YFLogxK
U2 - 10.1053/j.semperi.2009.12.004
DO - 10.1053/j.semperi.2009.12.004
M3 - Review article
C2 - 20207261
AN - SCOPUS:77649158402
VL - 34
SP - 121
EP - 124
JO - Seminars in Perinatology
JF - Seminars in Perinatology
SN - 0146-0005
IS - 2
ER -