Ethics of clear health communication: Applying the CLEAN look approach to communicate biobanking information for cancer research

Alexis Koskan, Mariana Arevalo, Clement K. Gwede, Gwendolyn P. Quinn, Shalewa A. Noel-Thomas, John S. Luque, Kristen J. Wells, Cathy D. Meade

Research output: Contribution to journalComment/debate

5 Scopus citations

Abstract

Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers' ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to illustrate the use of an organizing framework, the CLEAN (Culture, Literacy, Education, Assessment, and Networking) Look approach for creating educational priming materials about the topic of biobanking.

Original languageEnglish (US)
Pages (from-to)58-66
Number of pages9
JournalJournal of health care for the poor and underserved
Volume23
Issue number4 SUPPL.
DOIs
StatePublished - Nov 1 2012

Keywords

  • Biobanking
  • Ethics
  • Health communication

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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    Koskan, A., Arevalo, M., Gwede, C. K., Quinn, G. P., Noel-Thomas, S. A., Luque, J. S., Wells, K. J., & Meade, C. D. (2012). Ethics of clear health communication: Applying the CLEAN look approach to communicate biobanking information for cancer research. Journal of health care for the poor and underserved, 23(4 SUPPL.), 58-66. https://doi.org/10.1353/hpu.2012.0192