Electronic applications for the CFQ-R scoring

Andreas Ronit, Marco Gelpi, Jonathan Argentiero, Inger Mathiesen, Susanne D. Nielsen, Tanja Pressler, Alexandra Quittner

Research output: Contribution to journalLetter

2 Citations (Scopus)

Abstract

Patient reported outcomes (PROs) have become widely accepted outcome measures in cystic fibrosis (CF) and other respiratory diseases. The Cystic Fibrosis-Questionnaire-Revised (CFQ-R) is the best validated and most widely used PRO for CF. Data collection can be time-intensive, and electronic platforms would greatly facilitate the feasibility, utility and accuracy of administration of the CFQ-R. Given that the CFQ-R is utilized in virtually all clinical trials worldwide and is increasingly integrated into clinical practice, we developed a software application that will help users to administer, score and save CFQ-R data for all versions. All codes are open access, which will enable other PRO users to design similar applications for other respiratory diseases, such as primary ciliary dyskinesia and non-CF bronchiectasis.

Original languageEnglish (US)
Article number108
JournalRespiratory Research
Volume18
Issue number1
DOIs
StatePublished - May 30 2017
Externally publishedYes

Fingerprint

Cystic Fibrosis
Kartagener Syndrome
Bronchiectasis
Fibrosis
Software
Outcome Assessment (Health Care)
Surveys and Questionnaires
Clinical Trials
Patient Reported Outcome Measures

Keywords

  • Application
  • Cystic fibrosis
  • Patient reported outcomes
  • Software

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

Cite this

Ronit, A., Gelpi, M., Argentiero, J., Mathiesen, I., Nielsen, S. D., Pressler, T., & Quittner, A. (2017). Electronic applications for the CFQ-R scoring. Respiratory Research, 18(1), [108]. https://doi.org/10.1186/s12931-017-0592-z

Electronic applications for the CFQ-R scoring. / Ronit, Andreas; Gelpi, Marco; Argentiero, Jonathan; Mathiesen, Inger; Nielsen, Susanne D.; Pressler, Tanja; Quittner, Alexandra.

In: Respiratory Research, Vol. 18, No. 1, 108, 30.05.2017.

Research output: Contribution to journalLetter

Ronit, A, Gelpi, M, Argentiero, J, Mathiesen, I, Nielsen, SD, Pressler, T & Quittner, A 2017, 'Electronic applications for the CFQ-R scoring', Respiratory Research, vol. 18, no. 1, 108. https://doi.org/10.1186/s12931-017-0592-z
Ronit A, Gelpi M, Argentiero J, Mathiesen I, Nielsen SD, Pressler T et al. Electronic applications for the CFQ-R scoring. Respiratory Research. 2017 May 30;18(1). 108. https://doi.org/10.1186/s12931-017-0592-z
Ronit, Andreas ; Gelpi, Marco ; Argentiero, Jonathan ; Mathiesen, Inger ; Nielsen, Susanne D. ; Pressler, Tanja ; Quittner, Alexandra. / Electronic applications for the CFQ-R scoring. In: Respiratory Research. 2017 ; Vol. 18, No. 1.
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