Electronic applications for the CFQ-R scoring

Andreas Ronit, Marco Gelpi, Jonathan Argentiero, Inger Mathiesen, Susanne D. Nielsen, Tanja Pressler, Alexandra Quittner

Research output: Contribution to journalLetter

2 Scopus citations

Abstract

Patient reported outcomes (PROs) have become widely accepted outcome measures in cystic fibrosis (CF) and other respiratory diseases. The Cystic Fibrosis-Questionnaire-Revised (CFQ-R) is the best validated and most widely used PRO for CF. Data collection can be time-intensive, and electronic platforms would greatly facilitate the feasibility, utility and accuracy of administration of the CFQ-R. Given that the CFQ-R is utilized in virtually all clinical trials worldwide and is increasingly integrated into clinical practice, we developed a software application that will help users to administer, score and save CFQ-R data for all versions. All codes are open access, which will enable other PRO users to design similar applications for other respiratory diseases, such as primary ciliary dyskinesia and non-CF bronchiectasis.

Original languageEnglish (US)
Article number108
JournalRespiratory Research
Volume18
Issue number1
DOIs
StatePublished - May 30 2017
Externally publishedYes

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Keywords

  • Application
  • Cystic fibrosis
  • Patient reported outcomes
  • Software

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

Cite this

Ronit, A., Gelpi, M., Argentiero, J., Mathiesen, I., Nielsen, S. D., Pressler, T., & Quittner, A. (2017). Electronic applications for the CFQ-R scoring. Respiratory Research, 18(1), [108]. https://doi.org/10.1186/s12931-017-0592-z