Cystic fibrosis research in allied health and nursing professions

Judy M. Bradley, Susan Madge, Alison M. Morton, Alexandra Quittner, J. Stuart Elborn, Janice Abbott, Shoshi Armoni, Baroukh Assae, Judy Bradley, Vibsen Bregnballe, Mandy Bryon, Brenda Button, Sira Cordioli, Mary Corey, Christiane DeBoeck, J. Stuart Elborn, Mark Elkins, Evie Gardner-McCrum, Anna Gravelle, Claire Glasscoe & 17 others Goldbeck Lutz Goldbeck, Trudy Havermans, Martin Hug, Ellen Julie Hunstad, Lisa Kent, Maya Kirszenbaum, Susan Madge, Eleanor Main, Alison Morton, Maggie McIlwaine, Ammani Prasad, Ulrike Pypops, Alexandra L. Quittner, Julius Sims, Chiara Tartali, Els Van der Wiel, Susan Wolfe

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

This report is the result of the "Allied Health and Nursing Professions Working Group" meeting which took place in Verona, ITA, November 2009, which was organised by the European Cystic Fibrosis Society, and involved 32 experts. The meeting was designed to provide a "roadmap" of high priority research questions that can be addressed by Allied Health Professionals (AHP) and nursing. The other goal was to identify research skills that would be beneficial to AHP and nursing researchers and would ultimately improve the research capacity and capability of these professions. The following tasks were accomplished: 1) a Delphi survey was used to identify high priority research areas and themes, 2) common research designs used in AHP and nursing research were evaluated in terms of their strengths and weaknesses, 3) methods for assessing the clinimetric and psychometric properties, as well as feasibility, of relevant outcome measures were reviewed, and 4) a common skill set for AHPs and nurses undertaking clinical research was agreed on and will guide the planning of future research opportunities. This report has identified important areas and themes for future research which include: adherence; physical activity/exercise; nutritional interventions; interventions for the newborn with CF and evaluation of outcome measures for use in AHP and nursing research. It has highlighted the significant challenges AHPs and nurses experience in conducting clinical research, and proposes strategies to overcome these challenges. It is hoped that this report will encourage research initiatives that assess the efficacy/effectiveness of AHP and nursing interventions in order to improve the evidence base. This should increase the quality of research conducted by these professions, justify services they currently provide, and expand their skills in new areas, with the ultimate goal of improving care for patients with CF.

Original languageEnglish
Pages (from-to)387-392
Number of pages6
JournalJournal of Cystic Fibrosis
Volume11
Issue number5
DOIs
StatePublished - Sep 1 2012

Fingerprint

Health Occupations
Cystic Fibrosis
Nursing
Allied Health Personnel
Research
Nursing Research
Nurses
Outcome Assessment (Health Care)
Exercise
Group Processes
Psychometrics
Patient Care
Research Design
Research Personnel
Newborn Infant

Keywords

  • Allied Health Professions
  • Key research skills
  • Nursing
  • Outcome measures
  • Research areas
  • Research design

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Pediatrics, Perinatology, and Child Health

Cite this

Bradley, J. M., Madge, S., Morton, A. M., Quittner, A., Elborn, J. S., Abbott, J., ... Wolfe, S. (2012). Cystic fibrosis research in allied health and nursing professions. Journal of Cystic Fibrosis, 11(5), 387-392. https://doi.org/10.1016/j.jcf.2012.03.004

Cystic fibrosis research in allied health and nursing professions. / Bradley, Judy M.; Madge, Susan; Morton, Alison M.; Quittner, Alexandra; Elborn, J. Stuart; Abbott, Janice; Armoni, Shoshi; Assae, Baroukh; Bradley, Judy; Bregnballe, Vibsen; Bryon, Mandy; Button, Brenda; Cordioli, Sira; Corey, Mary; DeBoeck, Christiane; Elborn, J. Stuart; Elkins, Mark; Gardner-McCrum, Evie; Gravelle, Anna; Glasscoe, Claire; Lutz Goldbeck, Goldbeck; Havermans, Trudy; Hug, Martin; Hunstad, Ellen Julie; Kent, Lisa; Kirszenbaum, Maya; Madge, Susan; Main, Eleanor; Morton, Alison; McIlwaine, Maggie; Prasad, Ammani; Pypops, Ulrike; Quittner, Alexandra L.; Sims, Julius; Tartali, Chiara; Van der Wiel, Els; Wolfe, Susan.

In: Journal of Cystic Fibrosis, Vol. 11, No. 5, 01.09.2012, p. 387-392.

Research output: Contribution to journalArticle

Bradley, JM, Madge, S, Morton, AM, Quittner, A, Elborn, JS, Abbott, J, Armoni, S, Assae, B, Bradley, J, Bregnballe, V, Bryon, M, Button, B, Cordioli, S, Corey, M, DeBoeck, C, Elborn, JS, Elkins, M, Gardner-McCrum, E, Gravelle, A, Glasscoe, C, Lutz Goldbeck, G, Havermans, T, Hug, M, Hunstad, EJ, Kent, L, Kirszenbaum, M, Madge, S, Main, E, Morton, A, McIlwaine, M, Prasad, A, Pypops, U, Quittner, AL, Sims, J, Tartali, C, Van der Wiel, E & Wolfe, S 2012, 'Cystic fibrosis research in allied health and nursing professions', Journal of Cystic Fibrosis, vol. 11, no. 5, pp. 387-392. https://doi.org/10.1016/j.jcf.2012.03.004
Bradley JM, Madge S, Morton AM, Quittner A, Elborn JS, Abbott J et al. Cystic fibrosis research in allied health and nursing professions. Journal of Cystic Fibrosis. 2012 Sep 1;11(5):387-392. https://doi.org/10.1016/j.jcf.2012.03.004
Bradley, Judy M. ; Madge, Susan ; Morton, Alison M. ; Quittner, Alexandra ; Elborn, J. Stuart ; Abbott, Janice ; Armoni, Shoshi ; Assae, Baroukh ; Bradley, Judy ; Bregnballe, Vibsen ; Bryon, Mandy ; Button, Brenda ; Cordioli, Sira ; Corey, Mary ; DeBoeck, Christiane ; Elborn, J. Stuart ; Elkins, Mark ; Gardner-McCrum, Evie ; Gravelle, Anna ; Glasscoe, Claire ; Lutz Goldbeck, Goldbeck ; Havermans, Trudy ; Hug, Martin ; Hunstad, Ellen Julie ; Kent, Lisa ; Kirszenbaum, Maya ; Madge, Susan ; Main, Eleanor ; Morton, Alison ; McIlwaine, Maggie ; Prasad, Ammani ; Pypops, Ulrike ; Quittner, Alexandra L. ; Sims, Julius ; Tartali, Chiara ; Van der Wiel, Els ; Wolfe, Susan. / Cystic fibrosis research in allied health and nursing professions. In: Journal of Cystic Fibrosis. 2012 ; Vol. 11, No. 5. pp. 387-392.
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