Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery

J. Abbott, J. S. Elborn, A. M. Georgiopoulos, L. Goldbeck, B. C. Marshall, K. A. Sabadosa, B. A. Smith, Alexandra Quittner

Research output: Contribution to journalArticle

18 Citations (Scopus)

Abstract

Background: Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery. Methods: An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals. Results: Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20% had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales. Conclusions: These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.

Original languageEnglish (US)
Pages (from-to)533-539
Number of pages7
JournalJournal of Cystic Fibrosis
Volume14
Issue number4
DOIs
StatePublished - Jul 1 2015

Fingerprint

Cystic Fibrosis
Mental Health
Delivery of Health Care
Guidelines
Surveys and Questionnaires
Caregivers
Decision Making
Referral and Consultation
Psychology
Morbidity

Keywords

  • Anxiety
  • Depression
  • Screening

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Pediatrics, Perinatology, and Child Health

Cite this

Abbott, J., Elborn, J. S., Georgiopoulos, A. M., Goldbeck, L., Marshall, B. C., Sabadosa, K. A., ... Quittner, A. (2015). Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery. Journal of Cystic Fibrosis, 14(4), 533-539. https://doi.org/10.1016/j.jcf.2014.12.015

Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery. / Abbott, J.; Elborn, J. S.; Georgiopoulos, A. M.; Goldbeck, L.; Marshall, B. C.; Sabadosa, K. A.; Smith, B. A.; Quittner, Alexandra.

In: Journal of Cystic Fibrosis, Vol. 14, No. 4, 01.07.2015, p. 533-539.

Research output: Contribution to journalArticle

Abbott, J, Elborn, JS, Georgiopoulos, AM, Goldbeck, L, Marshall, BC, Sabadosa, KA, Smith, BA & Quittner, A 2015, 'Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery', Journal of Cystic Fibrosis, vol. 14, no. 4, pp. 533-539. https://doi.org/10.1016/j.jcf.2014.12.015
Abbott, J. ; Elborn, J. S. ; Georgiopoulos, A. M. ; Goldbeck, L. ; Marshall, B. C. ; Sabadosa, K. A. ; Smith, B. A. ; Quittner, Alexandra. / Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery. In: Journal of Cystic Fibrosis. 2015 ; Vol. 14, No. 4. pp. 533-539.
@article{7c569dc88f084cb9a11efbbb37dfb894,
title = "Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery",
abstract = "Background: Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery. Methods: An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals. Results: Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20{\%} had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales. Conclusions: These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.",
keywords = "Anxiety, Depression, Screening",
author = "J. Abbott and Elborn, {J. S.} and Georgiopoulos, {A. M.} and L. Goldbeck and Marshall, {B. C.} and Sabadosa, {K. A.} and Smith, {B. A.} and Alexandra Quittner",
year = "2015",
month = "7",
day = "1",
doi = "10.1016/j.jcf.2014.12.015",
language = "English (US)",
volume = "14",
pages = "533--539",
journal = "Journal of Cystic Fibrosis",
issn = "1569-1993",
publisher = "Elsevier",
number = "4",

}

TY - JOUR

T1 - Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery

AU - Abbott, J.

AU - Elborn, J. S.

AU - Georgiopoulos, A. M.

AU - Goldbeck, L.

AU - Marshall, B. C.

AU - Sabadosa, K. A.

AU - Smith, B. A.

AU - Quittner, Alexandra

PY - 2015/7/1

Y1 - 2015/7/1

N2 - Background: Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery. Methods: An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals. Results: Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20% had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales. Conclusions: These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.

AB - Background: Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery. Methods: An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals. Results: Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20% had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales. Conclusions: These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.

KW - Anxiety

KW - Depression

KW - Screening

UR - http://www.scopus.com/inward/record.url?scp=84929486328&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84929486328&partnerID=8YFLogxK

U2 - 10.1016/j.jcf.2014.12.015

DO - 10.1016/j.jcf.2014.12.015

M3 - Article

VL - 14

SP - 533

EP - 539

JO - Journal of Cystic Fibrosis

JF - Journal of Cystic Fibrosis

SN - 1569-1993

IS - 4

ER -