@inbook{4407eeb004d642349d7c32a37af82b74,
title = "Chronic Illness",
abstract = "Advances in medicine, including new treatments, improved diagnostic tools, and better follow-up care have prolonged and enhanced the lives of adolescents with chronic illnesses. Research suggests that in the United States, approximately one million children have a chronic illness that impacts their daily life (e.g., diabetes), while another ten million children have a chronic illness that is less severe (e.g., controlled asthma). Due to their chronic illness, adolescents face numerous challenges, including achieving developmental milestones, adhering to daily treatments, and transitioning to adult care. In addition, these adolescents are at heightened risk for developing symptoms of anxiety, PTSD, and depression. Further, the effects of a chronic illness extend beyond the individual to the entire family system. The purpose of this article is to discuss relevant issues associated with chronic illness in adolescence, including the prevalence of various chronic illnesses, developmental considerations, adolescent and family functioning, adherence to medical regimens, pain, and health-related quality of life (HRQOL).",
keywords = "Adherence, Adjustment, Chronic illness, Coping, Development, Health-related quality of life, Interventions, Multidisciplinary team, Pain, Treatment",
author = "Quittner, {A. L.} and Romero, {S. L.} and Kimberg, {C. I.} and Blackwell, {L. S.} and I. Cruz",
note = "Funding Information: Alexandra L. Quittner, PhD is a professor of psychology and pediatrics at the University of Miami and an associate editor for Health Psychology. Recently, she received a Lifetime Achievement Award, the Dr Richard C. Talamo Clinical Research Award, from the CF Foundation and was named a Cooper Fellow at the University of Miami (2009–12). She graduated with her PhD in clinical psychology from the University of Western Ontario, Canada in 1987. Her research focuses on the measurement of adherence and health-related quality of life in children and adolescents with chronic illnesses. She has developed a health-related quality of life measure for cystic fibrosis, which has been translated into 30 languages and is being used in international clinical trials. She is completing two NIH-funded grants evaluating family-based interventions to improve adherence to treatment regimens for adolescents and school-age children with CF, and just received a new NIH grant to evaluate a web-enabled cell phone to promote adherence in teens with CF. In addition, she is conducting an international epidemiological study of depression in children and adults with cystic fibrosis and parent caregivers. She has been continuously funded by NIH and other granting agencies over the past 22 years and has published over 90 articles and book chapters. Funding Information: Cara I. Kimberg, PhD is a postdoctoral research fellow at the University of Miami where she is funded on a NICHD T32 training grant. Dr Kimberg completed her clinical internship at Kennedy Krieger Institute, Johns Hopkins School of Medicine where she specialized in pediatric neuropsychology and pediatric psychology. She received her degree in clinical psychology from the Department of Clinical and Health Psychology at the University of Florida. Dr Kimberg specialized in pediatric neuropsychology and received an Autism Speaks/National Alliance for Autism Research Mentor-Based Fellowship to fund her graduate training. The focus of her dissertation was on the development and assessment of a play-based measure designed to objectively evaluate the restricted, repetitive behaviors seen in young children with autism. Dr Kimberg is interested in the interplay among neurocognitive functions and health-related behaviors for children and adolescents with chronic conditions. Funding Information: Ivette Cruz, PhD is a postdoctoral research fellow at the University of Miami. Dr Cruz completed her clinical internship at the Mailman Center for Child Development where she specialized in pediatric psychology. She received her degree in clinical psychology from the Department of Psychology at Nova Southeastern University. Dr Cruz's graduate work was funded by foundation grants and a NIH Pre-doctoral Minority Fellowship award. Dr Cruz has conducted research in cystic fibrosis and other pediatric conditions such as childhood deafness and disorders of sexual development. She has several publications and has presented poster and oral presentations at professional conferences. She also has experience providing therapeutic services to children and families with chronic illnesses, including diabetes, cancer, and sickle cell disease. Dr Cruz's current research interests include identifying barriers to treatment adherence in children and families, developing short interventions to improve adherence, and conducting research that can be applied to improve language and academic success in young deaf children with cochlear implants. Dr Cruz's career goals include teaching at the college/university level, participating in research activities, and practicing clinical/pediatric psychology with children and families. Copyright: Copyright 2013 Elsevier B.V., All rights reserved.",
year = "2011",
doi = "10.1016/B978-0-12-373951-3.00105-8",
language = "English (US)",
isbn = "9780123739513",
volume = "3",
pages = "91--99",
booktitle = "Encyclopedia of Adolescence",
publisher = "Elsevier Inc.",
}
