Cell phone intervention to improve adherence: Cystic fibrosis care team, patient, and parent perspectives

Kristen K. Marciel, Lisa Saiman, Lynne M. Quittell, Kevin Dawkins, Alexandra Quittner

Research output: Contribution to journalArticle

58 Citations (Scopus)

Abstract

Background: Treatment regimens for patients with cystic fibrosis (CF) are time-consuming and complex, resulting in consistently low adherence rates. To date, few studies have evaluated innovative technologies to improve adherence in this population. Current infection control guidelines for patients with CF seek to minimize patient-to-patient transmission of potential pathogens. Thus, interventions must avoid face-to-face contact and be delivered individually, limiting opportunities for peer support. This study aimed to develop and assess a web-enabled cell phone, CFFONE™, designed to provide CF information and social support to improve adherence in adolescents with CF. Methods: The acceptability, feasibility, and utility of CFFONE™ were evaluated with health care professionals (n=17) adolescents with CF aged 11-18 years old (n=12), adults with CFaged 21-36 years old (n=6), parents of adolescents with CF (n=12), and technology experts (n=8). Adolescents also tested a prototype of CFFONETM (n=9). Qualitative and quantitative data were collected. Results: Focus group data with health care professionals indicated a need for this intervention, and indicated that CFFONE™ would be likely to improve knowledge and social support, and somewhat likely to improve adherence. Adolescent, adults, and parents all rated CFFONE™ as likely to improve adherence. Technology experts rated the prototype design and format as appropriate. Conclusions: The current study provided some support from key stakeholders for this intervention to improve adherence in adolescents with CF. Next steps include a multi-center trial of the efficacy and safety of CFFONE™.

Original languageEnglish
Pages (from-to)157-164
Number of pages8
JournalPediatric Pulmonology
Volume45
Issue number2
DOIs
StatePublished - Feb 1 2010

Fingerprint

Patient Care Team
Cell Phones
Cystic Fibrosis
Technology
Social Support
Parents
Delivery of Health Care
Infectious Disease Transmission
Infection Control
Focus Groups
Guidelines
Safety
Population

Keywords

  • Adherence
  • Adolescents
  • Cell phone
  • Cystic fibrosis
  • Social support

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Pulmonary and Respiratory Medicine

Cite this

Cell phone intervention to improve adherence : Cystic fibrosis care team, patient, and parent perspectives. / Marciel, Kristen K.; Saiman, Lisa; Quittell, Lynne M.; Dawkins, Kevin; Quittner, Alexandra.

In: Pediatric Pulmonology, Vol. 45, No. 2, 01.02.2010, p. 157-164.

Research output: Contribution to journalArticle

Marciel, Kristen K. ; Saiman, Lisa ; Quittell, Lynne M. ; Dawkins, Kevin ; Quittner, Alexandra. / Cell phone intervention to improve adherence : Cystic fibrosis care team, patient, and parent perspectives. In: Pediatric Pulmonology. 2010 ; Vol. 45, No. 2. pp. 157-164.
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