TY - JOUR
T1 - Barriers to treatment adherence for children with cystic fibrosis and asthma
T2 - What gets in the way?
AU - Modi, Avani C.
AU - Quittner, Alexandra L.
N1 - Funding Information:
This study was funded in part by the Agency for Healthcare and Research Quality at the National Institutes of Health (F31-H511768-01) and a grant awarded to Johnson and Quittner (National Institutes of Health— HL69736). We extend our deepest appreciation to the children with cystic fibrosis and asthma and their families who participated in this study, as well as the research assistants who recruited participants and collected the data.
PY - 2006/9
Y1 - 2006/9
N2 - Objectives: The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods: Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. Results: Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. Conclusion: Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.
AB - Objectives: The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods: Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. Results: Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. Conclusion: Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.
KW - Barriers
KW - Knowledge
KW - Patient-provider communication
KW - Pulmonary
KW - Treatment
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U2 - 10.1093/jpepsy/jsj096
DO - 10.1093/jpepsy/jsj096
M3 - Article
C2 - 16401680
AN - SCOPUS:33746007043
VL - 31
SP - 846
EP - 858
JO - Journal of Pediatric Psychology
JF - Journal of Pediatric Psychology
SN - 0146-8693
IS - 8
ER -