Attitudes Toward Transitioning in Youth With Perinatally Acquired HIV and Their Family Caregivers

Niraj Sharma, Elizabeth Willen, Ana Garcia, Tanvi S. Sharma

Research output: Contribution to journalArticle

21 Scopus citations

Abstract

This study investigated the preparedness and views of patients with perinatally acquired HIV and their family caregivers about transitioning to adult medical care. Fifteen participants (ages 15-24 years) with perinatally acquired HIV and eight family caregivers participated in structured interviews. All interviews were recorded and analyzed for themes using qualitative research methodology. Three major themes emerged: (a) perceived lack of readiness for transition, (b) fear of change and anxiety about entering the adult health care system, and (c) burgeoning personal responsibility that comes with age. Participants also offered suggestions to improve the transition experience, including starting the process early with specific guidelines. All patients and family caregivers wanted early knowledge about transition; these individuals could be an important resource to find potential solutions to guide the transition process. Clinical outcomes must be assessed in patients undergoing transition to determine the effect on management of medical disease, and protocols must be developed.

Original languageEnglish (US)
Pages (from-to)168-175
Number of pages8
JournalJournal of the Association of Nurses in AIDS Care
Volume25
Issue number2
DOIs
StatePublished - Mar 1 2014

Keywords

  • Adolescent
  • AIDS
  • Health care transition
  • HIV

ASJC Scopus subject areas

  • Advanced and Specialized Nursing

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