Assessing health-related quality of life in disorders of sex development

Phase I - Item generation

David E. Sandberg, Melissa D. Gardner, Barry A. Kogan, Mary Beth Grimley, Laura Cohen, Adrianne N. Alpern, Alexandra Quittner

Research output: Chapter in Book/Report/Conference proceedingChapter

3 Citations (Scopus)

Abstract

Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation.

Original languageEnglish
Title of host publicationAdvances in Experimental Medicine and Biology
Pages143-146
Number of pages4
Volume707
DOIs
StatePublished - Jul 29 2011
Externally publishedYes

Publication series

NameAdvances in Experimental Medicine and Biology
Volume707
ISSN (Print)00652598

Fingerprint

Disorders of Sex Development
Quality of Life
Health
Sexual Development

ASJC Scopus subject areas

  • Biochemistry, Genetics and Molecular Biology(all)
  • Medicine(all)

Cite this

Sandberg, D. E., Gardner, M. D., Kogan, B. A., Grimley, M. B., Cohen, L., Alpern, A. N., & Quittner, A. (2011). Assessing health-related quality of life in disorders of sex development: Phase I - Item generation. In Advances in Experimental Medicine and Biology (Vol. 707, pp. 143-146). (Advances in Experimental Medicine and Biology; Vol. 707). https://doi.org/10.1007/978-1-4419-8002-1_31

Assessing health-related quality of life in disorders of sex development : Phase I - Item generation. / Sandberg, David E.; Gardner, Melissa D.; Kogan, Barry A.; Grimley, Mary Beth; Cohen, Laura; Alpern, Adrianne N.; Quittner, Alexandra.

Advances in Experimental Medicine and Biology. Vol. 707 2011. p. 143-146 (Advances in Experimental Medicine and Biology; Vol. 707).

Research output: Chapter in Book/Report/Conference proceedingChapter

Sandberg, DE, Gardner, MD, Kogan, BA, Grimley, MB, Cohen, L, Alpern, AN & Quittner, A 2011, Assessing health-related quality of life in disorders of sex development: Phase I - Item generation. in Advances in Experimental Medicine and Biology. vol. 707, Advances in Experimental Medicine and Biology, vol. 707, pp. 143-146. https://doi.org/10.1007/978-1-4419-8002-1_31
Sandberg DE, Gardner MD, Kogan BA, Grimley MB, Cohen L, Alpern AN et al. Assessing health-related quality of life in disorders of sex development: Phase I - Item generation. In Advances in Experimental Medicine and Biology. Vol. 707. 2011. p. 143-146. (Advances in Experimental Medicine and Biology). https://doi.org/10.1007/978-1-4419-8002-1_31
Sandberg, David E. ; Gardner, Melissa D. ; Kogan, Barry A. ; Grimley, Mary Beth ; Cohen, Laura ; Alpern, Adrianne N. ; Quittner, Alexandra. / Assessing health-related quality of life in disorders of sex development : Phase I - Item generation. Advances in Experimental Medicine and Biology. Vol. 707 2011. pp. 143-146 (Advances in Experimental Medicine and Biology).
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