Assessing health-related quality of life in disorders of sex development: Phase I - Item generation

David E. Sandberg, Melissa D. Gardner, Barry A. Kogan, Mary Beth Grimley, Laura Cohen, Adrianne N. Alpern, Alexandra L. Quittner

Research output: Chapter in Book/Report/Conference proceedingChapter

4 Scopus citations

Abstract

Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation.

Original languageEnglish (US)
Title of host publicationHormonal and Genetic Basis of Sexual Differentiation Disorders and Hot Topics in Endocrinology
Subtitle of host publicationProceedings of the 2nd World Conference
EditorsMaria New, Joe Leigh Simpson
Pages143-146
Number of pages4
DOIs
StatePublished - Jul 29 2011

Publication series

NameAdvances in Experimental Medicine and Biology
Volume707
ISSN (Print)0065-2598

ASJC Scopus subject areas

  • Biochemistry, Genetics and Molecular Biology(all)

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    Sandberg, D. E., Gardner, M. D., Kogan, B. A., Grimley, M. B., Cohen, L., Alpern, A. N., & Quittner, A. L. (2011). Assessing health-related quality of life in disorders of sex development: Phase I - Item generation. In M. New, & J. L. Simpson (Eds.), Hormonal and Genetic Basis of Sexual Differentiation Disorders and Hot Topics in Endocrinology: Proceedings of the 2nd World Conference (pp. 143-146). (Advances in Experimental Medicine and Biology; Vol. 707). https://doi.org/10.1007/978-1-4419-8002-1_31