Abstract
Community-based participatory research (CBPR) is challenging to research ethics committees (RECs). We reviewed the REC preparedness when reviewing CBPR projects. We searched the MEDLINE database and included qualitative studies of CBPR researchers or REC members about their experiences with RECs. The search yielded 107 studies, of which 10 met our criteria. Barriers were that the community is not prepared to conduct research, the reluctance of RECs to work outside the university, the difficulty RECs have understanding CBPR, and that REC forms evaluate individual rather than community risk. Facilitators were having a CBPR expert as an REC member and educating RECs. Therefore, RECs are not prepared to evaluate CBPR projects leading to unnecessary delays in the approval process.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 488-495 |
| Number of pages | 8 |
| Journal | Journal of Empirical Research on Human Research Ethics |
| Volume | 10 |
| Issue number | 5 |
| DOIs | |
| State | Published - Dec 1 2015 |
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Keywords
- community consent
- community involvement
- community risk
- community-based participatory research
- IRB/REC forms
ASJC Scopus subject areas
- Medicine(all)
Cite this
Are Research Ethics Committees Prepared for Community-Based Participatory Research? / Tamariz, Leonardo; Medina, Heidy; Taylor, Janielle; Carrasquillo, Olveen; Kobetz, Erin; Palacio, Ana M.
In: Journal of Empirical Research on Human Research Ethics, Vol. 10, No. 5, 01.12.2015, p. 488-495.Research output: Contribution to journal › Review article
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TY - JOUR
T1 - Are Research Ethics Committees Prepared for Community-Based Participatory Research?
AU - Tamariz, Leonardo
AU - Medina, Heidy
AU - Taylor, Janielle
AU - Carrasquillo, Olveen
AU - Kobetz, Erin
AU - Palacio, Ana M
PY - 2015/12/1
Y1 - 2015/12/1
N2 - Community-based participatory research (CBPR) is challenging to research ethics committees (RECs). We reviewed the REC preparedness when reviewing CBPR projects. We searched the MEDLINE database and included qualitative studies of CBPR researchers or REC members about their experiences with RECs. The search yielded 107 studies, of which 10 met our criteria. Barriers were that the community is not prepared to conduct research, the reluctance of RECs to work outside the university, the difficulty RECs have understanding CBPR, and that REC forms evaluate individual rather than community risk. Facilitators were having a CBPR expert as an REC member and educating RECs. Therefore, RECs are not prepared to evaluate CBPR projects leading to unnecessary delays in the approval process.
AB - Community-based participatory research (CBPR) is challenging to research ethics committees (RECs). We reviewed the REC preparedness when reviewing CBPR projects. We searched the MEDLINE database and included qualitative studies of CBPR researchers or REC members about their experiences with RECs. The search yielded 107 studies, of which 10 met our criteria. Barriers were that the community is not prepared to conduct research, the reluctance of RECs to work outside the university, the difficulty RECs have understanding CBPR, and that REC forms evaluate individual rather than community risk. Facilitators were having a CBPR expert as an REC member and educating RECs. Therefore, RECs are not prepared to evaluate CBPR projects leading to unnecessary delays in the approval process.
KW - community consent
KW - community involvement
KW - community risk
KW - community-based participatory research
KW - IRB/REC forms
UR - http://www.scopus.com/inward/record.url?scp=84983471965&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84983471965&partnerID=8YFLogxK
U2 - 10.1177/1556264615615008
DO - 10.1177/1556264615615008
M3 - Review article
C2 - 26527370
AN - SCOPUS:84983471965
VL - 10
SP - 488
EP - 495
JO - Journal of Empirical Research on Human Research Ethics
JF - Journal of Empirical Research on Human Research Ethics
SN - 1556-2646
IS - 5
ER -