OBJECTIVE: To elucidate factors that influence African American willingness to participate in health-related research studies. METHODS: The African American Alzheimer disease research study group at North Carolina A&T State University designed an in-person questionnaire and surveyed more than 700 African American adults on their willingness to participate in health-related research studies. The questionnaire was distributed and collected in a nonclinical setting during the years 2008 and 2009. This study was approved by the North Carolina A&T State University Institutional Review Board. RESULTS: Of the 733 valid respondents, 16% had previously participated in a health-related research study. Of these, more than 90% were willing to participate again in future research studies. Of the 614 who had never participated in a research study, more than 70% expressed willingness to participate. The majority (75%) of experienced research study participants (RSP) were older than 40 years compared with 45% of non-research study participants. Experienced research participants were also twice as likely to have a college degree compared with non-research study participants. Seventy-three percent of non-research study participants were willing to participate in research studies in the future. The factors that were probable impediments to participation included lack of time and trust. Men with knowledge of the Tuskegee Syphilis Study were 50% less likely to be willing to participate compared with those who had not heard of Tuskegee Syphilis Study. CONCLUSIONS: African Americans are willing to participate in health-related research studies. Several factors such as the appropriate incentives, community trust building, outreach, and community partnership creation are necessary for engaging minority participants. Incorporating factors that target African American enrollment in research design and implementation, such as increased training of minority health ambassadors and African American researchers and public health specialists, are needed to better engage minorities across generations, in research.
- African American
- Health-related research studies
ASJC Scopus subject areas
- Public Health, Environmental and Occupational Health
- Health Policy
African American participation in health-related research studies : Indicators for effective recruitment. / Lang, Rosalyn; Kelkar, Vinaya A.; Byrd, Jennifer R.; Edwards, Christopher L.; Pericak-Vance, Margaret A; Byrd, Goldie S.In: Journal of Public Health Management and Practice, Vol. 19, No. 2, 01.03.2013, p. 110-118.
Research output: Contribution to journal › Article
TY - JOUR
T1 - African American participation in health-related research studies
T2 - Indicators for effective recruitment
AU - Lang, Rosalyn
AU - Kelkar, Vinaya A.
AU - Byrd, Jennifer R.
AU - Edwards, Christopher L.
AU - Pericak-Vance, Margaret A
AU - Byrd, Goldie S.
PY - 2013/3/1
Y1 - 2013/3/1
N2 - Lippincott Williams & Wilkins.
AB - Lippincott Williams & Wilkins.
KW - African American
KW - Health-related research studies
KW - Recruitment
UR - http://www.scopus.com/inward/record.url?scp=84873302543&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84873302543&partnerID=8YFLogxK
U2 - 10.1097/PHH.0b013e31825717ef
DO - 10.1097/PHH.0b013e31825717ef
M3 - Article
VL - 19
SP - 110
EP - 118
JO - Journal of Public Health Management and Practice
JF - Journal of Public Health Management and Practice
SN - 1078-4659
IS - 2