TY - JOUR
T1 - A multi-method assessment of treatment adherence for children with cystic fibrosis
AU - Modi, Avani C.
AU - Lim, Crystal S.
AU - Yu, Nami
AU - Geller, David
AU - Wagner, Mary H.
AU - Quittner, Alexandra L.
N1 - Funding Information:
Twenty-six patients in the current study were part of a larger, longitudinal adherence intervention trial funded by the National Institutes of Health (NIH) [32] . Only self-report data were available for four children because they had begun an adherence intervention study, which could impact their subsequent adherence scores over the 3-month study period. Thus, no data were included in analyses from participants after they started the intervention.
PY - 2006/8
Y1 - 2006/8
N2 - Background: Adherence rates for chronic pediatric conditions are approximately 50%. The primary objective of the study was to assess rates of adherence using four different measurement methods for children with cystic fibrosis (CF). Methods: Participants included 37 children with CF between 6 and 13 years of age and their primary caregivers. Adherence measures included parent and child self-reports, diary data, pharmacy refill history, and electronic monitors. Results: Results suggested that rates of adherence varied by treatment component and across measurement methods. However, when examining more objective measures, rates of overall adherence were below 50% for children with CF, indicating generally poor adherence to the treatment regimen. For example, rates of adherence to enzyme medications, using electronic and diary measures, ranged from 27% to 46%. Conclusions: The multi-method measurement approach provided unique information regarding rates of adherence for each disease condition by type of treatment component. Accurately measuring rates of treatment adherence for children with CF is an important step in developing effective interventions to influence these behaviors.
AB - Background: Adherence rates for chronic pediatric conditions are approximately 50%. The primary objective of the study was to assess rates of adherence using four different measurement methods for children with cystic fibrosis (CF). Methods: Participants included 37 children with CF between 6 and 13 years of age and their primary caregivers. Adherence measures included parent and child self-reports, diary data, pharmacy refill history, and electronic monitors. Results: Results suggested that rates of adherence varied by treatment component and across measurement methods. However, when examining more objective measures, rates of overall adherence were below 50% for children with CF, indicating generally poor adherence to the treatment regimen. For example, rates of adherence to enzyme medications, using electronic and diary measures, ranged from 27% to 46%. Conclusions: The multi-method measurement approach provided unique information regarding rates of adherence for each disease condition by type of treatment component. Accurately measuring rates of treatment adherence for children with CF is an important step in developing effective interventions to influence these behaviors.
KW - Compliance
KW - Daily diary
KW - Electronic monitoring
KW - Pediatric
KW - Pharmacy refill
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U2 - 10.1016/j.jcf.2006.03.002
DO - 10.1016/j.jcf.2006.03.002
M3 - Article
C2 - 16679071
AN - SCOPUS:33745994280
VL - 5
SP - 177
EP - 185
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
SN - 1569-1993
IS - 3
ER -