A call to action: Antiracist patient engagement in adolescent and young adult oncology research and advocacy

Christabel K. Cheung, Reginald Tucker-Seeley, Simon Davies, Megan Gilman, Kimberly A. Miller, Gilberto Lopes, Gail D. Betz, Thuli Katerere-Virima, Laura E. Helbling, Bria N. Thomas, Mark A. Lewis

Research output: Contribution to journalReview articlepeer-review

2 Scopus citations

Abstract

Amidst the concurrent global crises of coronavirus disease 2019 (COVID-19), uprisings against Anti-Black racism and police brutality, as well as anti-Asian racism and violence, the field of medicine found itself simultaneously called upon to respond as essential workers in the public health devastation of COVID-19, and as representatives of healthcare institutions wrought with the impacts of systemic racism. Clinicians, researchers, and advocates in adolescent and young adult (AYA) oncology, must come together in authentic activism to begin the work of creating structural change to advance antiracist approaches to patient engagement in AYA oncology research and advocacy. Critical review of existing practices is needed to ensure that ethical and effective research methods are employed when engaging with racial and ethnic minority AYA patients with cancer, who may be particularly vulnerable and exploited in the current context.

Original languageEnglish (US)
Pages (from-to)3743-3756
Number of pages14
JournalFuture Oncology
Volume17
Issue number28
DOIs
StatePublished - Oct 2021

Keywords

  • AYA
  • COVID-19
  • PCORI
  • adolescent and young adult oncology
  • antiracist
  • patient advocacy
  • patient engagement
  • psychosocial
  • racial/ethnic minority
  • research methods

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

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